Rare Disease Day reminds us that while a disease may be rare, the struggle for treatment is shared by millions. In India, the legal landscape for “Orphan Diseases” has shifted significantly with the revised National Policy for Rare Diseases.
As an advocate, I see the law as a vital tool for families navigating these medical crises. Here is how legal advocacy supports the rare disease community:
- Access to Financial Grants: The government now provides up to ₹50 Lakhs for all categories of rare diseases. We help families navigate the procedural bottlenecks to access this aid.
- Import & Tax Benefits: Recent notifications provide full exemption from Basic Customs Duty and IGST on specific rare disease medicines. We assist in ensuring these benefits reach the end user.
- Crowdfunding Legalities: For treatments costing crores (like SMA), we help set up legal frameworks for transparent crowdfunding and corporate donations.
Justice isn’t just found in courtrooms; it’s found in ensuring that no child is denied treatment due to the “rarity” of their condition. At the law firm of Prakhar Gupta, we are proud to be a voice for the rare.
Advocate Prakhar Gupta | Advocate in Kota | Lawyer in Kota | Lawfirm in KotannLegal Disclaimer: nThe information provided in this article (and any related content) is for general educational and informational purposes only. It does not constitute legal advice, nor does it create an attorney-client relationship between the reader and the author or the firm.nFor specific legal queries or urgent advice regarding your rights and options, please consult with a qualified lawyer to ensure your interests are protected based on the most current laws and your specific situation.